Sarah B the OT

 GBS|CIDP Foundation International Patient Stories         Clint Shaffer              https://www.gbs-cidp.org/patient-stories/clint-shaffer/         https://www.medcomic.com/medcomic/guillain-barre-syndrome     Clint was a normal athlete with ambitions to be a body builder. He worked out regularly, and took his fitness and physique very seriously. One day, this feet and toes went numb. He noticed that this numbness spread throughout the following week and months. He also noticed significant fatigue. Workouts he used to do with ease were now almost impossible. He got some tests done, and they came back with no abnormalities. He then got some more nervous system tests, and the official diagnosis was  Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP), which we are learning in class as Guillain Barré Syndrome (GBS).  The symptoms of this auto immune di...

How I Live Now: Life With ALS The Diagnosis Rachel Doboga                                  https://howilivewithals.com/2016/05/21/the-diagnosis/                          http://weboc.alsa.org/site/PageServer/?pagename=OC_1_whatIs     Rachel Doboga was diagnosed with ALS at 28 years old. She was a teacher and loved to travel, but all of that got put to rest after her diagnosis. She uses her blog as a platform for her disease. In this specific post, it is about her diagnosis. She explains what she was learning, and who her medical team was. I chose this story because Rachel really talked about and praised her occupational therapist, Deb, throughout this post. She mentioned how Deb encouraged her to do things that SHE wanted to do, and I am so glad that Rachel chose to include this in her post. Occupat...

Neuro Note #4 A quadriplegic mother on raising twins: "Having a disability is not the end of the world"   Lee Cowan                    https://www.cbsnews.com/news/dani-s-twins-documentary-quadriplegic-mother-on-raising-twins/          This blog post is about Danny Izzy, a quadriplegic super mom. She got her spinal cord injury from slipping on her bathroom floor. This was kind of shocking to me because I think if spinal cord injuries as being traumatic, but hers was something as simple as slipping in her home. She recovered but was left paralyzed from her chest down. She did not let this ruin her life. She met her husband Rudy, and he loved her regardless of her disability. She found out she could still have kids, so she ended up with twins! I learned that just because she was paralyzed, that it did not mean she could not have babies. I think we assume that people in wheelchairs cannot have kids, b...

Neuro Note #3:   Margie Alley Plays Ping- Pong to Cope with Parkinson's Disease https://www.brainandlife.org/articles/playing-ping-pong-to-cope-with-parkinsons-disease/?utm_source=Informz&utm_medium=Email&utm_campaign=21%20Brain%20&%20Life&utm_content=Parkinson%27s%20Spotlight%206      I loved this story! It is about Margie Alley who was diagnosed with Parkinson's Disease at age 48, used sports and movement to cope with the new changes in her life. She talked about some of her setbacks like tremors and medication, but those did not stop her. This was super awesome because you hear of most people with Parkinson's not want to move because they are scared or it hurts them. I feel like her way of coping and keeping herself active is amazing for her mind, soul, and body. I compared my case study on Parkinson's to this story, and her way of staying active will benefit her so much more in the long run. My grandfather has Parkinson's and he does to like to b...